Long Covid recovery success story - also many sources of information

[Pluvious]

Note: This is not mine, Casey is a UK citizen (socialized medicine, not predatory for profit American medicine).

I have been very immersed into this Long Covid topic recently, since apparently I have it now

I was shocked to learn that over 65 million people globally are currently suffering from various severity levels of "Post Covid Condition" and over 400 million have had it since the pandemic started.

Basically there are five categories of symptoms, which are not mutually exclusive:
Extreme fatigue, depression and anxiety, GI issues, cognitive impairment, heart and respiratory issues

Good introduction to this topic:
https://www.yalemedicine.org/news/long-covid-symptoms

I will be following up on some of his additional information, as well as (hopefully) interacting with a Long Covid Program here in my area. If there are any DUers here reading this, lmk with a comment if you'd like me to post progress updates as I pursue a cure and recovery...

Regarding Casey's 12 minute video...

This video was very informative and helpful, both for ideas and emotional support (anxiety and depression is one of the joys of this affliction).

[MLAA]

1. Please keep us posted on your progress.

Best wishes!

[Lochloosa]

2. Please post anything. I have two of the top five. Fatigue and CI.

January 2021. Positive for 14 days.

This is just from my own experience but I started taking Celebrex for my back pain. My cognitive impairment improved within 2 weeks. I'm wondering if the anti-inflammatory properties may have something to do with that?

[Pluvious]

4. Re CI and Fatigue

My sympathies for your struggles, friend

I keep telling myself, I will survive

Might be worth testing your serotonin levels (see Casey's video) ?

From what I've read, CI and fatigue can be caused by micro bloodclots
Some info here:

https://mvresearch.org/

And this is an interesting article about dysfunctional immune response which would cause fatigue:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10179190/

Cheers

[Skittles]

6. what is CI

thanks

[Lochloosa]

9. cognitive impairment

[sprinkleeninow]

3. Thanks for this. I'm experiencing 4-5 symptoms from a bout in 2021. nt

[Pluvious]

5. See my post 4 - best wishes, nt.

[sprinkleeninow]

7. I shared the link you provided with me, myself and I. 🙂

I was left with AFib as the most 'noticeable' symptom and so, on Diltiazem. Included in a recent diagnosis for another issue at a doc, the PA/FNP (whatever she was) also added anxiety n mild dementia. I read the printout awhile after the visit and had a bird. This was not my Primary Care Doc. Noone else noted any such things. Urgent Care, an ER visit, nowhere else. That particular practice was darn well apprised of my month of corona virus in 2021; 2 weeks in hospital and then almost 2 additional in rehab.

Forgive me 'overshooting the runway' with my long story.

My prayer-wish for you: Exceptional Well-being in Body, Mind and Spirit, henceforth and forevermore.🩵

[Ms. Toad]

8. I got the GI version.

It took a little over a year to get my GI system back to normal. Mine included pancreatitis, dysbiosis, some unidentified GI crud, plus some immune deficiencies (which seem to be missing from your categories of long COVID).

The trick to resolving the first and third seem to just be time. Kombucha made a dramatic difference in the gut dysbiosis - but only for a couple of days, initially. Initially, I needed to drink a bottle of kombucha every 3 days. It took most of a year before I could stretch the time between "treatments" out. I'm not sure of the status of immune deficiencies - it's not something they test for routinely. I did manage to go without masking for the spring theatrical performance (about 2 years after COVID) without coming down with some sort of respiratory condition. So maybe that is back to normal, as well. (I'm still masking indoors aside from occasionally eating out, and when I'm on stage)

[Pluvious]

11. Good grief, Ms. Toad, what an ordeal !

My heart goes out to you, glad to hear you got some normalcy back to your life

The best advice Casey had shared, imho, was to learn to accept your situation, which can be quite a challenge

This time of Covid has been very trying for so many, it's just mind boggling

But, more importantly, are you a fan of Murders In The Building ?
We're looking forward to seeing the new season

[Ms. Toad]

13. I'm big on negotiating truces with my body.

I've been doing it since the 80s, when I acquired a back injury. After trying to make it disappear for years, I finally accepted that it isn't going anywhere and worked out how to accommodate it so it doesn't interfere significantly with my life. As long as I keep up my end of the bargain, my life is not miserable.

That was the first of many. The mist recent being long COVID - with brewing and drinking large quantities of kombucha.

As to Murders in the Building . . . If it isn't on Netflix or Prime, I don't have access to it.

[Pluvious]

14. I only mentioned it because...

... it nicely captured the energy and atmosphere of the theater, and Martin Shorts' character is deeply in love with it
( especially season 3 )

If you ever pay for a month of Hulu's content, you could binge all the episodes
( then cancel - what do is "pause" Netflix for a month or two, and resume Hulu, rinse repeat ! )

If you try this trick, and want more content suggestions, just message me

https://en.wikipedia.org/wiki/Only_Murders_in_the_Building

[mitch96]

10. Crap, this scares the hell out of me. I'm just getting over my first bout of covid. Vaxed during the pandemic

but it got me last week.
Spooky stuff, I have to watch my self and see if any of this stuff shows up..
m

[Pluvious]

12. FWIW...

It's a friggin lottery

Thought I'd never get LC should I get infected again, but noooo

Apparently I got the Bad Genes

But the current variants are resulting in less severe symptoms for LC should you be unlucky

My advice is to remain very self aware and mindful of how you are feeling, particularly when
both exerting yourself or experiencing any kind of mental/emotional stress - if you start feeling
any symptoms then back off, don't try to push past it, you'll just make it worse

For example, check out this little discovery:
https://www.uclahealth.org/news/article/strenuous-exercise-can-lead-flare-long-covid-symptoms

Good luck, friend

[mitch96]

15. thanks!! nt

[NickB79]

16. I have ongoing respiratory issues

Caught it in 2022 despite being fully vaccinated. At the time I was a very healthy 42 yr old man.

Subsequently, I've had bronchitis 6 times in 2.5 yr. Any small cold goes straight to my lungs, requiring trips to Urgent Care for prednisone, antibiotics, and an inhaler. It's been hell. I was just there two days ago, and they've finally given me a referral to a pulmenologist to test my lung function and try to find a way to manage this proactively as adult onset asthma. Unfortunately, the earliest they can get me in is late January, and that clinic is 45 minutes away.

I wish I never caught COVID.