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Lotusflower70

(3,093 posts)
Mon May 21, 2018, 08:15 PM May 2018

Update on my son

I talked to him today and he sounds so much better. He said he wasn't trying to be mean when he said to leave a message for him at times. He said he was just focused on the groups and other stuff. No one thought it was mean, we knew he was working. He had a reaction with a medication the doctor said, which was part of the problem so they tweaked it. He said he was craving fish. I will definitely make him some. But he said he was opening up to therapy. I told him I was so proud of him. He said he wants a new bed. It's definitely a work in progress but there is progress. And talking about it with people that can relate helps. We're going in the right direction. Hopefully the botox works too. I'll know more tomorrow from his evaluation.

7 replies = new reply since forum marked as read
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Update on my son (Original Post) Lotusflower70 May 2018 OP
It sounds promising... Tobin S. May 2018 #1
dang it. we need some kind of post rating. mopinko May 2018 #2
Thanks, mo. Tobin S. May 2018 #4
Awesome post Lotusflower70 May 2018 #5
Sounds wonderful! Progress, however small or slow, is still progress! CaliforniaPeggy May 2018 #3
Good to hear an update Leighbythesea May 2018 #6
I'm glad he's doing better steve2470 May 2018 #7

Tobin S.

(10,420 posts)
1. It sounds promising...
Mon May 21, 2018, 08:28 PM
May 2018

...like a bad situation is starting to transform into something good and productive. A good support system can mean a world of difference for someone in your son's shoes. It sounds like you are definitely there for him. I've been hospitalized a few times. I would get locked into this interior nightmarish state seemingly unable to communicate my true feelings to anyone. I was able to break this terrible silence due to the love of my mother. She was the one person who I trusted enough to be able to open up, and that led to me being able to get the help that I needed.

The love of a mother or a father can break down those terrible barriers, or at least it allows the parent to take appropriate action when a serious problem arises. I know you said your son contacted someone else when he felt like he was getting close to the end, but he will remember how you have responded for him in this time of crisis, and hopefully understand that you are always on his side.

I thought no one cared about me. In fact, I thought the opposite was true...that everyone wanted me to die. I found out when I opened up to my mother about my distress just how many people truly care about me. It was a whole lot more than zero.

Lotusflower70

(3,093 posts)
5. Awesome post
Mon May 21, 2018, 09:55 PM
May 2018

I think sometimes because it's the two of us, we try to protect each other. Also he is a young adult male, sometimes he wants his space from mom. I have always said he could tell me anything. Sometimes he may think he doesn't want to hurt me or worries that I could have a seizure. I am epileptic and seizure free. But he saw the struggle so I'm sure that had an impact. Also he was bullied in school when he was younger. He switched to online. He was bored in public schools anyway.

I want to protect him too but I know I can't fix it. I can encourage and support him. I can tell him I am proud of him. I tell him I love him. I will always fight and advocate for him. Plus he signed a release of information so they can give me updates. That means the world. He contacted his neurologist. I am incredibly grateful. I am in awe that he held on. He was exhausted and desperate. Sometimes he needs other outlets. But there is nothing like a mother's love. I thanked her.I thanked the police officers and the health care professionals. He is getting great care.

Bottom line, whatever it takes. That's what I will do for him. I told him that. I think all those messages on the board for him made a difference. Every time someone called and couldn't reach him, they put a message on the board. He told me about it. In addition to me, his grandma, aunts, uncles and cousins called him. He had a lot of messages.

Leighbythesea

(92 posts)
6. Good to hear an update
Mon May 21, 2018, 10:29 PM
May 2018

And progress. Lately one of my favorite sayings is 'it's a slow process---but quitting won't speed it up." Hamg in there.

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