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Puzzler

(2,505 posts)
Mon Aug 20, 2018, 05:19 AM Aug 2018

Hi this is my first time I've felt comfortable

about posting here.

One of my issues is that I feel the need to constantly apologize ... I’m a little wordy, so please bear with me (I’ve been on DU from 2005). I am from Canada (although born in London, UK) .

I was diagnosed with clinical depression around the summer of 2010. Although it came as a huge shock to me that I had clinical depression.

I think my symptoms started as early as 2008. Although I’m not 100% sure.

Around that time I used to get a slightly vague flu-like nausea. Just mild at first, I think it often went away. But it always came back, and then the occasional panic attack started. However, my panic attacks did not seem to be triggered by anything. I used to fight these panic attacks.

Now, I am normally a very level-headed person, so I understood what was happening ... they sent by blood pressure way way high, and then my blood pressure dropped fast, very fast.

They became more frequent, I tried to tell some people, at first they understood, but the attacks became more frequent. I had to slowly stop working (for obvious reasons). And then in early 2010 I had an attack that seemed to last for hours. I thought any second that death was going to be instant. If I fainted I don’t know. But somehow I wasn’t scared. I can’t explain it no normal fear, but something I had never felt before. It was like incredible pain, but it didn’t feel like pain. It was like nothing I knew or could relate to.

I did recover, and felt some relief, but I was very shaken. I returned to work about 3 weeks later, but I didn’t feel normal.

The nausea came back, this time far worse and around June 2010 I was preparing for work (I worked nights), and I had another huge attack, this time worse. I have never been quite “normal” since”.

I thought I had leukaemia or something so did my (much older) parents. They came over and picked us up, and we spent a week out there. I improved occasionally, but then it got worse. I felt disembodied, they thought I might get better, but I went through a period of some strange hell for two maybe three days. I couldn’t even walk properly.

My father was now seriously worried that I was dangerously ill (not mentally). By now I remember going to the GP. He started checking me out and he said I was fine, however I had the symptoms of clinical depression. He immediately put a sublimgual Ativan under my tongue and sat with me. He also started me on Lexipro (spelling? sorry).

It was horrible at first, but I came around after about 14 days, possibly more? It was like a miracle. Although I still needed a while to recover. My blood tests showed one strange anomaly: my sodium level was very, very low. Luckily my heart and circulation were good, and oddly my cholesterol levels were very low. I was asked if I had been drinking a lot of water, and I had been, a lot, with zero appetite.

I guess my electrolytes were low and that could have been a contributing factor. (If I’m sounding ridiculously self-analytical your right!)

I’ll try and cut to the chase: my libido all but vanished. However, I returned to work and later had a good 9 months (of relative normality.

But I was never the same. I talked far too much, I lost close friends. I became estranged from my partner. And then I thought I was normal again, except this time I felt fearless (quite literally), everything I learned thoughout my life seemed to be instantly available at my recall. The problem was much of what I knew was real (I have an unusual second job involving New York and words). Consequently when I knew things I wasn’t joking. I think some people found me interesting, gradually most people avoided me.

I thought I was better in late 2017 (I had been prescribed far too much Lexipro 30 mgs.

I started reducing slowly, I felt better and I publicly came out and said what was wrong wrong with me. Congratulations poured in on FaceBook. But this year, after all that, after feeling more confident.

I’m in crisis. Right now. As I post. I’m lapsing between joy and despair.

I’m not suicidal.

I’m not going to self harm.

I have a good doctor now, but I’m just not sure what I feel.

FYI: I’ve had some major oral surgery dental work done over the last couple of months, and I was prescribed Tramadol.

I was an idiot a fool, I know what Tramadol is. It worked great! At least I thought it did. I had assured my doctor that I’d be ultra cautious. And I was. But after 3 days zero sleep. It’s been like this for about 6 weeks. I’m up, down all over the place.

I was told by several friends that I was BSing. Losing trust again is heartbreaking.

I gave in two days ago and took a tiny, tiny amount. It helped, I sleep at odd hours now (Erratic hours). Some people know this now, and I’m definitely not happy.

I will sleep. In maybe an hour or two. So don’t be alarmed. I’m serious, please don’t!

I repeat I’m not in danger!

I have no idea how people here will respond. But I just had to say what I said.

Finally, I’m aware most want to remain anonymous (and I respect that). But, if you need to see exactly who I am please feel free to look at my DU profile (Including my real name. You can Google my name to see who I am if need be.

If anyone’s uncomfortable with what I’ve said, I apologize. And sincerely thank all of you who read this.

(My doctor okayed my gradual reduction. He is very good: there’s far more to this, I can’t possibly get everything across in a one post).

-Puzzler

(I am trying not to edit this too much! If you see me back on the forum I may seem quite rational, I can and probably will be. That’s a huge problem!!!)

33 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Hi this is my first time I've felt comfortable (Original Post) Puzzler Aug 2018 OP
Thinking of you, Puzzler. MLAA Aug 2018 #1
Thanks Puzzler Aug 2018 #2
Thank you so very much Puzzler Aug 2018 #3
It can be hard and a struggle to find the right doc and the right meds Roland99 Aug 2018 #4
Thank you! Puzzler Aug 2018 #5
Puzzler, I wish you well. I have similar struggles. KY_EnviroGuy Aug 2018 #6
Yes! That had been suggested ... Puzzler Aug 2018 #9
That's not entirely what I understand. KY_EnviroGuy Aug 2018 #16
PS... KY_EnviroGuy Aug 2018 #17
Thank you (again) Puzzler Aug 2018 #20
Sending you hugs, hope, and for better days. FM123 Aug 2018 #7
Thank you! Puzzler Aug 2018 #10
suggestion ZombiWoof Aug 2018 #8
Thanks for the feedback, esp. the DNA part! Puzzler Aug 2018 #11
Welcome to DU ZombiWoof! FailureToCommunicate Aug 2018 #13
Love Zappa! And have very broad tastes ... Puzzler Aug 2018 #14
It sounds like a roller coaster ride for sure. Hang in there. I Do know this: that for FailureToCommunicate Aug 2018 #12
Yes it is ... Puzzler Aug 2018 #15
Thank you, for sharing. wendyb-NC Aug 2018 #18
thank you! Puzzler Aug 2018 #21
Fingers crossed shenmue Aug 2018 #19
Thank you! Puzzler Aug 2018 #22
You've been through a lot recently PennyK Aug 2018 #23
Thanks! Yes hi! Puzzler Aug 2018 #25
I woke up about 11/11:30 am PST: I'm OK! Puzzler Aug 2018 #24
I've got some recent, not long past... hunter Aug 2018 #26
I'm still here! Puzzler Aug 2018 #27
Thank you for sharing Lotusflower70 Aug 2018 #28
Thank you to you (and you plural)! Puzzler Aug 2018 #30
"Fighting" and "battle" don't work for me as metaphors. hunter Aug 2018 #32
Just checking in ... Puzzler Aug 2018 #29
BTW I have been reading every post! Puzzler Aug 2018 #31
I'm really good at acting like a functional human... up until the point I fall completely apart. hunter Aug 2018 #33

Puzzler

(2,505 posts)
3. Thank you so very much
Mon Aug 20, 2018, 05:40 AM
Aug 2018

Just your (plural!) views and acknowledgement means more to me than many (possibly not all) can imagine!!!


-Puzzler

(I think I’ll watch some Netflix and then get some sleep!)

Roland99

(53,345 posts)
4. It can be hard and a struggle to find the right doc and the right meds
Mon Aug 20, 2018, 05:43 AM
Aug 2018

Lexapro wasn’t good for my daughter at one point when she was younger.

Tramadol, for my back pain, makes me nauseous so I don’t really take that anymore

Hope you find an answer.

:hugs:

KY_EnviroGuy

(14,601 posts)
6. Puzzler, I wish you well. I have similar struggles.
Mon Aug 20, 2018, 06:28 AM
Aug 2018

Many of us were born a bit different and the system does not always know what to do with us.

I'm cautious about giving medical advice, but you may want to consider seeing an endocrinologist and have a full system work up done.

Personally, I have a weird combination of 1.) extreme system sensitivity to drugs, 2.) I am what's called an HSP (Highly Sensitive Person), 3.) an adrenal condition that causes frequent "physical" anxiety (from excess adrenaline), and late-life depression caused by years of earlier alcohol abuse. That may read as overwhelming, but I've taken it as a challenge to study and learn about these conditions. I'm also an introvert and that has its good and bad sides for dealing with health issues.

A good example is with depression. I went to a shrink and she tried me on several antidepressant but they all cause me to be hyper (dangerous for the work I was doing at that time) and the good effects wore off quickly. I struggled on an got by on OTC supplements like St. John's Wort and Sam-E for years, but recently borrowed some Effexor from a friend. I had tried it before and had a bad episode using it from just one capsule. Considering my ultra-high sensitivity to many chemicals, I took the little capsule and divided the granules into doses of 1/3 of a capsule, and that worked really well for me. By comparison, my best friend takes three of those capsules a day and feels that's not enough. Therefore, I can get by on on-ninth of what she takes.

So, our medical industry really does not know what to do with us odd-balls but we can try our best to help ourselves and each other.

Thanks for opening up and sharing!......... ...........

Puzzler

(2,505 posts)
9. Yes! That had been suggested ...
Mon Aug 20, 2018, 07:20 AM
Aug 2018

... by my doctor. He explained that the adrenal tumours were rare, and almost always non-malignant. I asked him about the procedure, he told me that it could be done relatively easily, with small surgical instruments. Apparently the stay in hospital is very short, often one night.

Is this consistent with what you know?

I remember, even posting something on FB about that. But I didn’t follow up on it.

BTW: I throughly understand your caveats, so please feel free to answer. I will not take your advice as medical (Sorry, I’m very precise in my words, or attempt to be

Cheers

-Puzzler

KY_EnviroGuy

(14,601 posts)
16. That's not entirely what I understand.
Mon Aug 20, 2018, 07:53 AM
Aug 2018

The disease is diagnosed first by extensive blood work and urine analysis by the endo. Next, if the tumors (Pheochromocytoma) are suspected, they run a nuclear scan called a MIBG, and perhaps an ultrasonic scan to confirm.

See: https://en.wikipedia.org/wiki/Pheochromocytoma

I had all the blood and urine work done, then an ultrasonic scan and then the MIBG, but mine did not show up. I'm thinking of going to another endo and trying again. Anytime I put pressure on my abdomen (upper part, say from squatting or bending down), I get the adrenaline rush and my BP goes out the roof. They say the excess adrenaline or norepinephrine is bad for our hearts, too.

However, I think some of those symptoms can indicate other diseases of the adrenals and thyroid, for example, so I wouldn't come to any conclusion before seeing an endo. Where I live in KY, it can take 3 or 4 months to get in to see one, mainly because they also treat diabetes.

As a side effect of all the work with the endo, I wound up also seeing a cardiologist and found out I also have some partial blockages and those can make the effects of adrenaline surge feel much worse!

And, no, from what I've read the surgery can be very dangerous and risky because anytime they disturb the adrenals, there is the risk of an adrenaline release so severe that can actually stop the heart. Therefore, the procedure must be done by highly qualified surgeons.

Some drugs prescribed for stress such as propranolol can really help reduce the effects of excess adrenaline. I've taken it and it works pretty darn good, but frightens me because I get a bad rebound effect from it if I stop taking it.

Please be patient with this and do lots of reading to ease your mind, and feel free to converse with others like myself to help relieve the stress. Let me know if I can be of further help.

...................

KY_EnviroGuy

(14,601 posts)
17. PS...
Mon Aug 20, 2018, 08:09 AM
Aug 2018

If and when you shop for an endocrinologist and if you have some flexibility in your choices, make sure you specify you need one knowledgeable with the adrenals, pituitary and thyroid and not just a specialist in something like diabetes.

Best of luck!......

 

ZombiWoof

(5 posts)
8. suggestion
Mon Aug 20, 2018, 06:58 AM
Aug 2018

Check out [link:https://www.pathway.com/mental-health-dna-insight/] Insight DNA testing to save yourself the "trial and error" bullshit that the shrinks will put you through. I hope the link worked, this is my first response (I tend to lurk). Good luck to you, recovery from this is possible, it's a lot of work, but it's worth it. Stay strong. Reach out if you need anything.

FailureToCommunicate

(14,342 posts)
12. It sounds like a roller coaster ride for sure. Hang in there. I Do know this: that for
Mon Aug 20, 2018, 07:25 AM
Aug 2018

all the mental storms and/or physical challenges we have been dealt, the capacity of the human spirit to overcome them, or at least make peace with them, is nearly limitless.

Good luck on your ride.

wendyb-NC

(3,855 posts)
18. Thank you, for sharing.
Mon Aug 20, 2018, 08:30 AM
Aug 2018

It helps to reach out. Please, let your doctor know if the highs and lows are a new symptom, for you, or you feel your efforts to get out of the cycle, aren't as effective as you hoped. Six weeks is a long time, without decent sleep. Exhaustion, can alter your ability to function safely, and maintain a sense of equanimity, in daily stuff.

I have experienced depression and anxiety, much of my life. I was formally diagnosed twenty years ago. I am "stable" at this point, and remain on an antidepressant. When I tried to quit the medication, a few years ago, I became very erratic, in terms of my emotions. I stopped because I lost the 4th job in 3 years, had no income nor health insurance.
I was relatively new in town and had not found a doctor, at that point. The doctor where I lived previously was able to help, until I could find health care agencies, locally who would see me without money or insurance. I know the sense of desperation, loss of a sense of personal integrity, feeling,disenfranchised, a loss worth, as a person. It took several months to find the right agency that fit my needs. I had to keep myself centered and a push forward.

My heart goes out to you, these things are so multifaceted, but find your center in a flow of peace and clarity. Your strong, be determined to get better and back to your native self. I sure hope you do.

PennyK

(2,314 posts)
23. You've been through a lot recently
Mon Aug 20, 2018, 12:42 PM
Aug 2018

Totally understandable that what happened, with you and the meds, happened.
My issues are small compared to yours, and I hope you'll get past these feelings. Take what you need to get by and find a thing or two to distract you. As long as you're eating and drinking, and sleeping at times, you're going to be okay.
My favorite distractions are period murder mysteries, either in books or TV (Prime and Acorn have a lot of goodies). They're puzzles of a kind. Just watched the four "Suspicions of Whicher," which weren't bad. And of course, The Alienist in either form.

Puzzler

(2,505 posts)
25. Thanks! Yes hi!
Mon Aug 20, 2018, 02:29 PM
Aug 2018

I’ve just posted on FB (a play it forward video). Off FB for now.

I have lots of those “puzzles”

Watched BritBox after posting and then fell asleep, albeit a bit later


-Puzzler

Puzzler

(2,505 posts)
24. I woke up about 11/11:30 am PST: I'm OK!
Mon Aug 20, 2018, 02:09 PM
Aug 2018

Thank you all. I did sleep it was difficult but I did sleep!

I know I’m not “better”!

But the main point is that I AM OK!!!


Thank you all.

(I may not be able to thank everyone. Please understand!)


I’m now going to read the bloody news

I’ll be around

I will be around!!!

Sincerely,

-Puzzler

(posting from my iPhone LTE network, back to my Telus Wifi now)

hunter

(39,005 posts)
26. I've got some recent, not long past...
Tue Aug 21, 2018, 06:16 PM
Aug 2018

... danger to self, thankfully not to others, locked up in the psych ward experience.

Sadly pysch meds sometimes fade.

Some people call it the merry-go-round. Sometimes people quit psych meds because the side effects suck. Anorgasmia? Dull cardboard human character in a bad novel? Really???

I've been riding the storm of madness since late adolescence. I was "asked" to take time out from university twice to get my shit together. It took me nine years to graduate, and it was only accomplished by newer meds that worked, more or less.

I've never been suicidal, not explicitly, but I have done things desperate to have that feeling I'm still alive, even if it hurts. Even if it's bloody or drowning and it's hurting really, really bad.

Hang in there.

I'm a fortunate soul. My current meds, even the crappy anti-psychotics I loathe, work well enough.

Blessed be you to find that place.

My doctors and therapists suggest there's some PTSD component in there as well, but I'm not yet willing to go there, and may not ever be.

More-or-less functional, because of, or in spite of my meds is glorious, much better than the alternatives.

Too bad it took half a century of sometimes hard living for me to figure that out.

Puzzler

(2,505 posts)
27. I'm still here!
Tue Aug 21, 2018, 06:48 PM
Aug 2018

After saying I was OK yesterday, I had an intense afternoon. However managed to calm down by evening.

I’m currently resting today (hopefully just for today).

Taking it easy. Not interacting on FaceBook, if I can avoid it, but will probably check back here in a few hours!


Thank you all!

-Puzzler

Lotusflower70

(3,093 posts)
28. Thank you for sharing
Tue Aug 21, 2018, 07:34 PM
Aug 2018

And for continuing to battle on because it definitely is a battle. I appreciate and respect the strength it takes.

My son has chronic migraines, insomnia and depression. He fights every day to find his way.

Stay strong and keep fighting.

hunter

(39,005 posts)
32. "Fighting" and "battle" don't work for me as metaphors.
Wed Aug 22, 2018, 12:51 PM
Aug 2018

I bend in the storms and don't break.

I'll lose a lot of leaves sometimes, but I still stand.

I've got migraines that are just a cherry on the top of the depression, hallucinations, and other madness I'm prone to, but the migraines have gotten milder as I've gotten older, approaching sixty. Now they are mostly just blinding and confusing, but they no longer leave me lying on the bathroom floor in front of the toilet in the dark wishing I'd die. But they'll still mess up my day, even if I'm quick with meds.

with the usual caveat that one size does not fit all. We are all explorers.





Puzzler

(2,505 posts)
29. Just checking in ...
Wed Aug 22, 2018, 06:11 AM
Aug 2018

... to say hello.

Doing OK (around 4:00 am PT). I’m checking some of the (good!) news (in the main DU area) at present (made me laugh!).

Apologies if I’m breaking the spirit of this area/forum in any way.

One day at a time, kind of thing ... but I’m not convincing myself that it will be for very long (ie: just a day or so ... maybe)

I know I’m over-analyzing, BTW. That’s a big issue for me, but some of that is what makes me tick anyway (based on my other “job/activity”)

I’m often “good” at “fooling” people (sometimes intentionally, sometimes not)

Anyway, thank you for listening (again!)

-Puzzler





hunter

(39,005 posts)
33. I'm really good at acting like a functional human... up until the point I fall completely apart.
Wed Aug 22, 2018, 01:10 PM
Aug 2018

I think that's a really common feeling.

Maybe it's not "fooling" people so much as it's an unwillingness to inflict one's own troubles on others.

It's only a bad thing when it prevents you from reaching out for help when you need it.

I've found a lot to think about in your posts.

Thanks.



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