Veterans
Related: About this forumMy family needs advice re: our schizophrenic/manic/depressive brother
We are currently seeking advice from the VA medical center at American Lake Washington but frankly we just don't know what questions to be asking.
My brother Jeff served in the Navy for two years, 77 thru 79 I think, but definitely NOT during war time. While in service he had a surgery done to his nose and almost immediately came down with scarlet fever type symptoms. He describes how he had a fever OVER 109 degrees sustained, that the doctor told him it likely caused brain damage. He further describes how his skin all peeled off, that he was force fed intravenously and had to sleep on a bed of cold water. A few months after he recovered from this he was mysteriously discharged from the navy for "Other Good And Sufficient Reasons When Determined By The Secretary Of The Navy", a discharge that we think is of the Under Honorable Conditions variety.
Since his discharge my brother's mental state has deteriorated to a point that those who spend any time with him can easily see that he has little grasp of reality. He claims that he is 'Space', that he is 135 billion years old, that there are "decoherent beings" in a constant dialog with him (that won't shut up), that he wants to go home, (um...your guess where home is is as good as mine here). Furthermore he wears leg wraps made of sticks, wires, empty butane lighters and dead batteries. Around his neck he wears a typical household smoke detector which has fastened to it bits of glass, more empty cigarette lighters, bits of rocks and other whatnots. His yard is equally bizarre, which annoys the hell out of his neighbors, and rocks, trees, sticks and bits of glass all talk to him. That's my brother, we tell folks that Jeff sees life in a way nobody else I know of has access to.
It seems likely to me that the Scarlet Fever triggered all of this. Jeff's doctors at the VA acknowledge that he is schizophrenic but they won't go any further than to prescribe him medications that Jeff utterly refuses to take. Jeff claims that these doctors can not treat him for being 'telepathic', that treating him for schizophrenia is a waste of everyone's time. His doctors are now threatening to withhold any further meds from him, they want him instead to report in for shots but my brother refuses this too.
At this point we are considering taking Jeff to civilian doctors because we feel that the VA may be unable or possibly unwilling to help.
The advice we seek:
Is there any way we can get help upgrading Jeff's mysterious discharge to a medical one and if so would it grant him any additional medical disability benefits? IMHO Jeff should be institutionalized or at the very least our government should be helping us take care of him. We have his medical records, sketchy as they are they do confirm much of Jeff's story. That said, we can not find out why Jeff was discharged from the Navy, nor does he have any idea why it happened. Any help on this would be greatly appreciated.
Ilsa
(62,263 posts)I have no idea about the VA angle on this and his benefits.
Generally, in the public healthcare system, you cannot force treatment unless he a danger to himself or others.
I hope someone here can get you the answers.
Yes, we are bumping into Jeff's not wanting to take medications and we choose not to force the issue. With Jeff, trying to force him to do or not do anything results in a disastrous screaming fit! Currently my other brother Ron is his primary care giver/custodian of Jeffs funds. Ron and I see to Jeff's needs best we can. What I seek with my post is advice on gaining further help from the government, if such help is even plausible.
AC_Mem
(1,979 posts)Ask your social worker.
chknltl
(10,558 posts)Both my brother and I live about 20 miles away from the VA Hospital at American Lake, (Washington state). I and my other brother Ron, (Jeff's 'custodian'), know that Jeff is eligible to go to civilian hospitals for emergency services. Ron may not be aware that Jeff, through Veterans Choice, should also be eligible for civilian services, if American Lake services can't meet up with Jeff's needs in a timely manor. I'll pass this along the link to Veterans Choice to my brother Ron. Thanks
AC_Mem
(1,979 posts)I work at the VA. we do everything we can to help our Vets
stage left
(3,022 posts)All I can suggest is getting in touch with an organization called The National Alliance for Mental Health or NAMI. This is a grassroots organization made up of people who are dealing with family members with mental illness. My daughter has been diagnosed with major depression and I started going to Nami support groups in October of last year. It has been an enormous help. Just to know that you're not alone is an enormous help. Was your brother in his twenties when he first became ill? I ask because that's the usual age of onset for schizophrenia. My mother was schizo--affective, schizophrenic with a side of bipolar, so I know that they can be very resistant to treatment. My mother denied she had any problems. It was everyone else. Toward the end of her life she was convinced the government was trying to take her house.
Some caregivers in my group have had good results with the shots for their family members. Maybe you could tell him they're vaccinations or something. It's very difficult to deal with I know and not enough help out there. We should be ashamed that we don't do better by our veterans.
chknltl
(10,558 posts)For the first few years we thought he was playing a running gag on us when he claimed to be "God". If for instance we complained about the rain he would get mad at us because we were questioning his choice to make it rain, the trees needed it more than we did so he made it rain. It took a few more years before we figured out that he was being serious. Yes, my brother is bi-polar (manic/depressive). He and I and my two other brothers share this, we also have PTSD from an extremely abusive father. I shall look into this 'National Alliance for Mental Health', this being the first I've heard of it.
stage left
(3,022 posts)I meant National Alliance for Mental Illness. or NAMI. NAMI is fighting to remove the stigma from mental illness through education and awareness. They have classes as well as support groups for both those who have loved ones who are mentally ill, as well as the mentally ill people themselves. My daughter is attending a class at the moment as am I. All classes and support groups are free of charge. They are run by volunteers who have personal experience with the mentally ill and who have taken classes themselves. I don't know what your area is,but I'm in upstate South Carolina. Just google NAMI.
Yes,Late teens, early twenties is the usual onset for Schizophrenia, though the scarlet fever may have had an effect. There is some thinking that some mental illnesses may be due to inflammation of the brain, but not enough studies have been done yet.
Gman
(24,780 posts)Contact your local American Legion or VFW post. They often have advocates to help you navigate the VA system.
He doesn't seem a danger to himself or others from what you say. However, even though he'd be very upset about it, I think you should consider a forced commitment to a local hospital. By that I mean via a court order.
jwirr
(39,215 posts)adjustment in meds.
chknltl
(10,558 posts)This IS my brother we are talking about. IMHO his mental condition does indeed warrant him being institutionalized but even if such services were made available I think Jeff would be happiest tended to by us, his family. I am no doctor but if it comes to it, I'll side with the professionals on this. What I think would be most helpful is if the Government could give us a hand. Right now, when it comes to money, Jeff's income is breaking even when it comes to covering his needs. Jeff obviously is NOT allowed access to his social services income nor is my brother Ron, (Jeff's caretaker), complaining about the job he does for Jeff.
Regarding the local legal system, the County Sherriff's Dept, and nearby Yelm, and Eatonville PDs are all aware of Jeff's condition, (partially due to the neighbors calling the cops on him for his 'odd behavior' and for Jeff's occasional screaming fits directed at inanimate objects around his house and out in his little neighborhood). So far, Jeff has not done anyone harm nor broken any laws. From what I can tell my brother Jeff is fairly harmless.
Gman
(24,780 posts)But consider that he would be in a better frame of mind and relieved of his demons, at least to a degree, with a forced commitment. He'd better understand the need for meds. I know because I had to do the same thing with my brother. Wasn't a decision easily reached. But he was and is much better because of it. That was 25 years ago.
grasswire
(50,130 posts)oh...another idea. How about writing to Michelle Obama and Jill Biden? They are devoted to veterans issues.
chknltl
(10,558 posts)Back in the late '70s i called my congressman's office, (Rep.Norm Dicks) with an issue and my issue got resolved the very next day! Needless to say, Congressman Dicks had my loyalty till he recently retired. I will talk to my brother Ron, (Jeff's caretaker) about your suggestion. Perhaps even our Senator Patty Murray could also be helpful. It can't hurt to ask. Thanks.
pinboy3niner
(53,339 posts)As for Jeff's service separation, a letter signed by him and sent to his service branch inquiring about the basis for his discharge is the best bet, but be prepared because that kind of discharge is likely based on negative reports about him..
I really feel for you and your family in this position. But I'm impressed by what you and your brother are doing for Jeff. Best of luck to you.
chknltl
(10,558 posts)I'll urge my brother Ron to pursue that avenue of research about my brother's discharge. My brother Ron is the impressive one here, he has been caretaking for Jeff about a decade now. At first my mom did it, then she passed away and my sister took over Jeff's guardianship. When she married and moved out of state to Wisconsin my brother Ron took over. Ron isn't without financial resources and he has a keen analytical mind when it comes to numbers, finances and law. Ron is the one who has gotten Jeff into financial service assistance and helped Jeff connect with the VA Medical Center at American Lake.
Unfortunately the Doctors at American Lake are unable to help Jeff further because Jeff refuses to follow their instructions. Ron also feels Jeff's first two doctors were unhelpful anyway, the first one only wanted to play chess with Jeff! (Ron was there, he saw this!). Ron's next move is to take Jeff to Ron's own civilian Mental Health Specialist. Our hopes are that this new civilian Doctor can direct us better. Ron is aware that I am doing this bit of research here in the Vet's forum of DU-he said it couldn't hurt to ask and as you can see, we have had some great/helpful responses.