Doctors couldn't help. They turned to a shadow system of DIY medical tests.

[mopinko]

4. if it's not gonna kill u, and u arent writhing in pain, drs dont gaf.

even then, they dont want to do shit for someone who knows what they’re talking about.
i have a habit of telling the ppl i pay for services how to do their jobs. it doesnt usually end well. but when it does, it’s great. but no one hates that more than docs.

i’ve been a zebra looking for answers for over 20 yrs. i am absolutely certain i have an autoimmune/genetic disorder. i have a good guess what it is. i have widespread dysfunction, as did my da, and 3 of my 5 kids.
after 2 trips to the er in as many wks, i thought i had gotten their attention.
just saw a new doc. started the convo by telling him i’m a zebra, and hope he has patience w a cranky old zebra. he quoted the med school line that the term is derived from- when u hear hoof beats, think horses, not zebras. but i dont think he ever met 1. young dude.
listened intently, then reneged on a promise to ‘do something substantial for u today’

at 70, i’m getting “it’s unusual to dx ai at your age”. bitch, i’ve been looking for answers since i was 40.
hoping for better luck w a gi this wk, but…