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Cancer Support

KaryninMiami

(3,073 posts) Fri Feb 7, 2014, 12:20 AM Feb 2014

Diagnosis-rare form of non Hodgkin's lymphoma [View all]

Chemo regime starts Tuesday-3 days in a row, 3 weeks off, 3 days chemo for six cycles. Called "CHOPS" chemo protocol. Terrified, horrified, shocked, sad, angry- entire specturm of emotions as one would expect. Keep hoping I will wake up and have it be just a bad dream...
Anyone out there already through this or something similar? Any helpful chemo tips to share? Welcome any and all suggestions and support. Have a feeling I'm in for a long, brutal few months...

Thanks...

38 replies

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Diagnosis-rare form of non Hodgkin's lymphoma [View all] KaryninMiami Feb 2014 OP

Hang in there. Locate a support group and attend a couple of meetings. I didn't sinkingfeeling Feb 2014 #1

Do you have a nurse navigator? Ruby the Liberal Feb 2014 #2

Thank you KaryninMiami Feb 2014 #5

I also had a person called a patient advocate/coordinator who mapped out Nay Feb 2014 #7

Mine was through the cancer center at the hospital Ruby the Liberal Feb 2014 #8

Hi Karynin, pangaia Feb 2014 #3

Thanks for your advice! KaryninMiami Feb 2014 #4

You are very welcome. pangaia Feb 2014 #6

I have to second pangaia Ruby the Liberal Feb 2014 #9

I will only echo that the LLS group has been a wonderful source of support ... slipslidingaway Feb 2014 #11

Thanks so much-greatly appreciate your support! KaryninMiami Feb 2014 #13

We all need to support one another ... slipslidingaway Feb 2014 #15

I don't have any tips, just suport. 2theleft Feb 2014 #10

Thanks so very much for your lovely words and support KaryninMiami Feb 2014 #12

Quick update from Lymphoma -Limboland KaryninMiami Feb 2014 #14

Better to make sure of the diagnosis ... slipslidingaway Feb 2014 #16

A vanishing fluke ! KaryninMiami Feb 2014 #19

Reading your update, you have some tough times ahead ... slipslidingaway Feb 2014 #24

I'll take this as a good sign Ruby the Liberal Feb 2014 #17

I sure hope so KaryninMiami Feb 2014 #18

Verdict is in- original diagnosis was correct. Chemo Starts Monday. KaryninMiami Feb 2014 #20

Hi there karynin.. pangaia Feb 2014 #21

Thanks for making me smile KaryninMiami Feb 2014 #22

Well I just realized I should call you Karyn.. DUH!!!! pangaia Feb 2014 #23

First round of chemo done KaryninMiami Feb 2014 #25

Great to hear the first session went well. pangaia Feb 2014 #26

New adventure every day KaryninMiami Feb 2014 #27

Have you considered a hair "halo" that can be worn under hats? deurbano Mar 2014 #28

Thanks very much- will look into it. KaryninMiami Mar 2014 #30

Hi Karyn, pangaia Mar 2014 #29

Symptoms subsided thank goodness KaryninMiami Mar 2014 #31

Hi Karyn, pangaia Mar 2014 #32

1 more to go in this round - however KaryninMiami Mar 2014 #33

Hair and blood cells pangaia Mar 2014 #34

Halfway thru chemo - yay! KaryninMiami Apr 2014 #35

Keeping you in thoughts! Ruby the Liberal Apr 2014 #36

Keeping you in my thoughts and prayers maddezmom Apr 2014 #37

Just checking in... 2theleft May 2014 #38