Diagnosis-rare form of non Hodgkin's lymphoma

[KaryninMiami]

4. Thanks for your advice!

Hi Pangaia,
Thanks for your response! So I have something called angioimmunoblastic TCell non Hodgkin's lymphoma. I start CHOP on Tues- 3 days on (3 hours, 1 hour, 1 hour) with 3 weeks off for six cycles. I've been reading up on this (probably way too much) and it appears that if the chemo works, a bone marrow transplant is the finishing touch as that's the only real cure. I called the lymphoma research foundation who matched me up with a buddy who had the same thing in 2012. We connected by phone today and it was amazingly helpful. She will be my coach and guide and for that I am grateful.

Losing my hair freaks me out but after reading the odds, I have to say that freaked me out more... Happy to know it will grow back as good as before (I have very thick, lustrous hair).

May want to find a local support group- please let me know how best to proceed.

I've been out of work since July and am on Cobra and I am concerned about not having any income but I do have savings and a great family so somehow I will get by...

Thanks for the chemo mouth advice- will remember that should it come up. I've already lost a ton of weight so eating healthy junk food (have been on a diet most of my life), might be a nice treat. Currently between fever and nausea, my appetite is pretty much gone.

Thanks again!