What a roller coast ride this has been ...

[slipslidingaway]

78. Where we are now ....

six month biopsy was all good, but we have been here before. No evidence of disease and 100% donor. My husband started the 'investigational drug Nexavar' about 100 days post transplant at a quarter of the dose. It appears that the most significant side effect has been in his blood pressure and he is now taking meds, they are not talking about increasing the dose at this point. His other counts look good, high potassium which the immunosuppressant drug does not help and higher creatinine levels, these have come back down in the last few weeks. They are monitoring these levels and adjusting meds as needed. Nothing too much to complain about, other than the fact that he relapsed and needed another allo transplant

Cataract surgery has been put on the table today and needs to be investigated as to when this should be done. Dry eyes, which could or not be some GVHD. All in all things are well, still shying away from crowds and uncooked veggies and fruit, no swimming etc. but generally the days are back to a normal routine.

One day at a time!