Welcome to DU! The truly grassroots left-of-center political community where regular people, not algorithms, drive the discussions and set the standards. Join the community: Create a free account Support DU (and get rid of ads!): Become a Star Member Latest Breaking News Editorials & Other Articles General Discussion The DU Lounge All Forums Issue Forums Culture Forums Alliance Forums Region Forums Support Forums Help & Search

Cancer Support

Showing Original Post only (View all)

OKNancy

(41,832 posts)
Thu Aug 4, 2016, 02:09 PM Aug 2016

Hello. I'm new to the Group. My dear husband has cancer [View all]

I am the wife of someone newly diagnosed with cancer.
I've read a lot of the posts here already. My husband has pretty much the same thing as alfredo.
He is stage IV cancer base of his tongue caused by hpv.
As he says "the 70s have come back to haunt me"

So far it's been tests, and biopsies, and more tests.... and bills and more bills.

Yesterday they did a biopsy on his thyroid because the first CAT scan he had showed a small something. Our radiology oncologist said probably nothing but did it out of an abundance of caution.
They kept him waiting on the gurney an hour and then used only a local....
long story short when he came back into where I was, he started crying like a baby.

He is only 63 and just the sweetest thing.

He will have 33 radiation treatments, and 3 powerful chemo treatments

He will have a feeding tube and a port put in next week I think ( meeting that surgeon next Tuesday )

So far my duties are to keep track of everything. I'm making a fun notebook for us. Of course they have given us all sorts of stuff and we have our own oncology nurse navigator ( she's really pretty) but I want to do a lot of this myself.

I am worried about money of course. We have a policy that has a 6450.00 out of pocket level and my husband works in construction. No sick leave, no paid insurance... hourly wages.

I'll probably post here just to clear my head. Thanks for those of you who have already posted in this group.
It's been helpful.

22 replies = new reply since forum marked as read
Highlight: NoneDon't highlight anything 5 newestHighlight 5 most recent replies
Sending many prayers and much love to you and your husband. woodsprite Aug 2016 #1
thank you so much OKNancy Aug 2016 #2
You need to be the one that writes everything down and act ad sinkingfeeling Aug 2016 #3
thank you OKNancy Aug 2016 #4
I'm in Fayetteville AR. We have a guy who lives in Stillwell and sinkingfeeling Aug 2016 #5
6 times.... that's terrible OKNancy Aug 2016 #7
I'm sorry to read this but please know you can unload here with us. Solly Mack Aug 2016 #6
Something to keep in mind PennyK Aug 2016 #8
thank you. I think they have been very open about side effects OKNancy Aug 2016 #9
HPV caused cancer is easier to treat than cancer caused by smoking. alfredo Aug 2016 #10
Is he a veteran? alfredo Aug 2016 #11
No OKNancy Aug 2016 #12
start looking for state and federal programs that can help defray costs. alfredo Aug 2016 #13
Sorry to hear you and your husband have joined the sucky club ... slipslidingaway Aug 2016 #14
thank you OKNancy Aug 2016 #15
Hope all is going well, waiting is very difficult, continue being a polite pain though ... slipslidingaway Aug 2016 #16
Nancy, I just found this.... dixiegrrrrl Nov 2016 #19
good morning... I stopped writing because all I felt like doing was complaining OKNancy Nov 2016 #20
Look into FMLA. Ms. Toad Aug 2016 #17
Thank you for posting. OKNancy Aug 2016 #18
Prayers for you and husband and for all cancer patients and those that love them. cpamomfromtexas Jan 2019 #21
Oh my. The new post today made me read through this thread again OKNancy Jan 2019 #22
Latest Discussions»Support Forums»Cancer Support»Hello. I'm new to the Gro...»Reply #0