Advice, please

[wackadoo wabbit]

19. OK, that's not ideal, but it still doesn't definitely mean that your masses are malignant

My gynecological oncologist, at the time he told me that a CA 125 under 500 was virtually never malignant, also said that, generally, a CA 125 over 1,000 meant that the mass was probably malignant. I specifically asked him (I'm a curious sort) what it meant if a CA 125 was between 500 and 1,000. He said that it could go either way. So it appears that you're in that gray area.

You asked for advice, so I'm going to give you some. If I were in your position, I wouldn't wait another moment. Downthread you said that there's a good gyn-onc at MU, but you're not sure if your insurance will cover them. Call your insurance company first thing on Monday to find out! Then make an appointment immediately and explain that your situation is time sensitive. Try to get in that week if you can.

If your insurance company won't cover out of state, then go to the best gynecological oncologist you can find that it will cover. For health, a one-hour drive is nothing at all.

(As an example, when my husband had cancer, we went to the best oncologist that our insurance would cover. She was 2.5 hours away, so it was a 5-hour roundtrip drive (which was great fun when he was doing chemo three times a week). But it was worth it.)

Your health is worth it.