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emcguffie

(1,924 posts)
16. I might get in trouble for this.
Wed Dec 21, 2011, 12:09 PM
Dec 2011

Last edited Wed Dec 21, 2011, 03:06 PM - Edit history (1)

BUt if you have a doctor that really wants you to exercise, find another doctor. [I'm editing to point that of course I am not qualified to give medical advice. But let's just say I've lived with this for a very long time, and I've done a great deal of research. And so this is just my opinion...]

There's a cover-up of CFS in this country and in the world. There's legitimate research that they try to shut down. Part of this effort has centered on making us all look bad and look like we're "too stressed out" or psychologically susceptible or some other nonsense. There's a physical cause, and somehow the government is responsible, and they don't want it figured out.

There is a school of thought that it's partly caused by left over radiation from all the atomic testing. I think they might be right. there's a veritable epidemic of CFS in the South Pacific.

Exercise is bad for people with CFS because your mitochondria, where energy is produced, do not work correctly. When you use up the energy you have stored in ATP, which you do not have enough of, your body starts breaking down the ADP. Then, you have to spend days recuperating while you make the ADP that your body broke down as emergency energy supplies.

If you do have to exercise, do not do anything aerobic. Do very mild strength training.

This is just my opinion, mind you. But it is based on a lot of experience with this disease.

And find a doctor that knows about it.

Years ago, I went to Dr. Benjamin Natelson in Newark. He diagnosed me. But, at that time, he believed it was caused by stress. I found another doctor. But Dr. Natelson has done lots of research, and he has now changed his mind. Too bad for me, he's in New York now. He's a neurologist, and he says it is clearly a neurological illness.

HE's recently done studies that pretty much rule out depression as a cause, as well. Thank you. Dr. Natelson. We're not depressed. We might feel depressed because we're so sick, but we're not sick because we're depressed, because we actually are not clinically depressed. So there.

Recommendations

0 members have recommended this reply (displayed in chronological order):

CFIDS/CFS/ME Anybody else? [View all] emcguffie Dec 2011 OP
by fm do you mean fibromyalgia? lins the liberal Dec 2011 #1
Yes. emcguffie Dec 2011 #2
That is interesting lins the liberal Dec 2011 #18
sudden onset CFIDS 1998 T Mexelbry Dec 2011 #3
Yep. Boudica the Lyoness Dec 2011 #4
I've been sick a long time, and not doing so well. emcguffie Dec 2011 #5
Thanks for the info about the ciguatera epitope. Boudica the Lyoness Dec 2011 #6
thanks, emcguffie. T Mexelbry Dec 2011 #7
No kidding! emcguffie Dec 2011 #8
I actually tried an alternative cure for sarcoidosis. emcguffie Dec 2011 #9
fibro kicked off by west nile virus mopinko Dec 2011 #10
YOu have to be really careful about the exercise. emcguffie Dec 2011 #14
Family health history is important to consider when dx/wFM condoleeza Dec 2011 #11
For me, it hasn't helped. It has helped, but not the CFIDS. emcguffie Dec 2011 #15
FM associated with a whole alphabet soup Warpy Dec 2011 #12
There are pain docs who will give you pain meds. emcguffie Dec 2011 #17
CFS and Fibro. here! We are Devo Dec 2011 #13
I might get in trouble for this. emcguffie Dec 2011 #16
Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»CFIDS/CFS/ME Anybody else...»Reply #16