Lupus

[Warpy]

3. My best friend always knew when I'd end up in the hospital

fighting one disaster or another because my cheeks would get dark pink and everybody else would think I was looking healthy for a change. It just signaled a bad flare and some sort of weird thing it took doctors a while to figure out.

I've always resisted the lupus diagnosis because I never thought I was quite that sick. I knew I had lupus-lite, Sjogren's, because a biopsy had confirmed it. When I look back over all the horrible things that have happened over the years, I'm not quite as sure.

I wish this article would get read widely, it explains so much about all of us living with a bowlful of alphabet soup chronic illnesses.

I'm a champion isolator, I just hate trying to plan things, being out of spoons that day and having to cancel. Civilians don't understand that we're not blowing them off, we're sick.

And I agree with Bettinger. It hurts to live.