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MuseRider

(34,502 posts)
11. I have it
Sat Nov 21, 2015, 10:11 PM
Nov 2015

was diagnosed 23 years ago. I am not sure I could help much, I know the disease but for some very lucky reason mine has stayed very mild and controllable. I would think a Rheumatologist would be the way to go. A lot of docs certainly know their stuff but this can be a very disabling disease and you will want the most up to date care you can get.

Mine was atypical, I only had one high sed rate however the symptoms were enough that my rheumatologist just said it was atypical and treated it. He also sent me to Mayo just to see what they thought. They agreed with him. So even if your sed rate does not rise it does not always mean you do not have it.

Good luck.

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Latest Discussions»Support Forums»Chronic Health Conditions Discussion and Support»Has anyone dealt with Rhu...»Reply #11