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pnwmom

(109,614 posts)
12. Keep eating gluten for now, but please ask a doctor to give you another
Wed Feb 22, 2017, 02:30 PM
Feb 2017

blood test -- the gluten panel. (If you've been eating low carb for a while you might actually need to increase the amount of gluten in your diet for a couple months before testing -- because the antibody tests only work if your body has been subjected to enough gluten. If you increase your gluten and realize you're sicker, there's your answer. )

Even if you tested negative in the past, that doesn't mean you'd be negative, today (just as someone can be negative for rheumatoid arthritis one year, but positive the next.)

If any of the blood tests are positive, or if just eating more gluten makes your symptoms worse, then you should go off gluten. Permanently. But you have to be scrupulous,, because in a sensitive person any amount could cause symptoms (or not cause symptoms but be causing invisible damage and increasing the risk of lymphoma.) My big symptom (besides fibromyalgia) is bleeding, and I can get it just from the amount of gluten in a generic pill. I also have to avoid any food that says it was made in a factory that processes wheat. Or any food that says "natural ingredient" without naming it, because barley has gluten, and barley isn't required to be labeled. Then there are the additives that contain gluten, lists of which you can find online. (Monosodium glutamate, for example.)

Only the phrase "gluten free" means a food has been tested and isn't contaminated.


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