CFIDS/CFS/ME Anybody else?

[emcguffie]

8. No kidding!

I should have developed a support system years ago, but I didn't.

Geez, it is terrible, and how could anybody possibly understand that going to the grocery store puts you in bed for 3 days? That's crazy! But that's what it does.

There is so much back story to this thing, it is quite disgusting. I did lots of research on it years ago, just enough to figure out the government is doing everything it can to stop us from figuring it out.

The US has gone to a lot of trouble to convince the UK and Australia and NZ to change the name of ME to CFS, and to treat CFS as a psychological illness. Like, hey, we're all crazy.

But there's just too much research that says that's not the case.

However, I was under the impression that they did indeed implement the name change in UK. And they shut down some really promising research. They shut down real research, and then fund research into its being caused by us being depressed or something.

Dr. Natelson in NY is collecting lots of evidence that it sure as hell isn't depression. That's a bit of good news.

More to come.

(I've been away and with computer problems. Need to sleep now,, I think.)